Avery

Since the last time I posted, we have been to the doctor weekly!  Each week comes with nerves and a lot of anxiety because we never know what to expect.  Just one week after our appointment when we were so excited to see the hydrops disappear, we found out that the hydrops are still there. In fact our specialist shared with us that hydrops means two or more areas on the body of the baby that has fluid. Just because one day there wasn't fluid evident in the heart doesn't mean it won't return the next day.  So what we saw as a miracle isn't what we had expected.  ALTHOUGH... we still have much hope for our sweet girl.  We are going to a cardiologist tomorrow to see her heart.  There is a concern with a cystic hydroma's that there can be a problem with the heart of the baby.  We are hopeful that Avery's will be the exception. 

Thanks for the continued prayers for us and Avery.  We know that God continues to work in the life of our family.  Of course this is never the path we would have chosen in order to have children, but we continued to be amazed at all the Lord is teaching us during this journey.  The lessons and picture of His love and grace continues to overwhelm us.  Each day is not easy and there have been plenty of moments when I especially am ready to throw in the towel.  Not giving up, but just moments when I just want to hide and really am tempted to ask why.  I think unless you walk through a journey like this, it's hard to understand the anxiousness that comes with it all.  I laugh each week when my blood pressure is taken and each new nurse says "oh my your blood pressure is so high!"  One week the doctor was ready to send me to the ER because she was sure I was ready to have a stroke.  I ask them to wait until the end of the appointment and try it again.  They are all so amazed at the BIG difference!  But they always understand it's a lot to take in and how nerves and the "white coat" can get me each time!

I will update more after our appointment tomorrow.